Condition, Disease and Syndrome Links
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
A [back to top]
ALS (Amyotrophic Lateral Sclerosis)
ALS Association
ALS Study of Gulf War Veterans
Alzheimer's Disease
ADEAR
AoA Alzheimer's Resource Room
Aging and Alzheimer's Disease
Alzheimer's Association
Alzheimer's Association (State) - SC
Alzheimer's Association (Upstate) - SC
Alzheimer's Association (Midstate) - SC
Alzheimer Resource Coordination Center - ARCC (SC)
American Health AssistanceFoundation
Amyotrophic Lateral Sclerosis – see ALS
Arthritis
Arthritis Foundation
Autism
Autism Awareness Centre Inc. provides information, education, and resources to families and professionals living and working with individuals with Autism Spectrum Disorder.
Autism: Family Village
AutismInfo.com
Autism Society of America
Autism Network Resources for Physicians
Autism-PDD Resource Network
Autism Resources - A Unique and Informative Web Site
Autism Today
Autism Treatment Center of America
Bridges
Center for Autism and Related Disabilities
Center For The Study Of Autism
Cure Autism Now
CSAAC
MAAP Services: The Autism Source
National Alliance for Autism Research
The Sibling Support Project
B [back to top]
Back Pain – see Chronic Pain, Scoliosisand Spine
Birth Defects
Birth Defect Research for Children
March of Dimes Birth Defects Foundation
National Birth Defects Prevention Network
Blind - see also Visually Impaired
AFB CareerConnect
American Blind Skiing Foundation non-profit totally volunteer organization that provides blind children and adults opportunities to build confidence and independence through skiing
American Council of the Blind
American Foundation for the Blind
American Printing House for the Blind
Bavisoft. Software for the blind and visually impaired audio games
Blind Babies Foundation
Blind Children's Center
blindsoftware.com premiere screen-reader accessible software
Braille Through Remote Learning
Dotless Braille an introduction to braille for sighted persons and includes new ideas and tools for learning and using braille
International Organization for the Blind free braille and large print books to the Blind and severely visually impaired. Informative site covering various topics on blindness
Large Print Reviews publishes reviews of large print and audio books and other items of interest to individuals with low vision, such as screen readers, talking web browsers, and magnifying devices. This site also includes articles related to low vision, eye disorders, and how to adapt to vision loss
National Braille Press Inc. publisher, self-help and computer access braille books and children's braille books
National Federation of the Blind
National Library for the Blind and Physically Handicapped
Recordings for the Blind and Dyslexic
The 6 Step Method helps VI children learn orientation skills using a cognitive based approach method of teaching orientation and mobility teaches travelers to use attention directing tools to pay attention to the environment, thereby ensuring competent mobility and helping to reduce the anxiety associated with mobility tasks
Vision of Children works toward the eradication of hereditary childhood blindness, ocular albinism and other blindness
Vision World Wide information, education, guidance and support, not only to the blind and visually impaired, but to the many professionals (medical, social and technical) who serve them
V. I. Guide provides a comprehensive set of Internet resources for parents and teachers of children with visual impairments
Visual Basic Tutorial For Blind Programmers designed for beginners who want to learn how to program in the Visual Basic Integrated Development Environment (IDE)
Brain Injury
Brain Injury Association Brain Injury Associations for each state
Brain Injury Information Network
Brain Injury Information Page
Head Injury Hotline
National Resource Center for Traumatic Brain Injury
Recovery Awareness Foundation assists primary caregiver of people who have suffered a Brain Injury
Traumatic Brain Injury Organization chat room
Traumatic Brain Injury Resource Guide brain functions and map
Brain Tumor – see also Cancer and Clinical Trials
American Brain Tumor Association
Cerebellar Mutism
Meningioma Support and Information
Skull Base Tumors Public Guestbook
C [back to top]
Cancer - see also Brain Tumor and Clinical Trials
CancerCare free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance
Cancer Clinical Trials
Cancer Fatigue
Cancer Guide
CancerNet
Cancerpage
CancerSource
Make a Wish Foundation
National Childhood Cancer Foundation (NCCF)
National Children's Cancer Society
National Coalition for Cancer Survivorship
National Institute for Cancer information on clinical trials for cancer
Pancreatica.org Texas Cancer Center brings up-to-date information and medical research to your kitchen table and explains treatment options in terms you can understand
Cerebral Palsy
United Cerebral Palsy Association
Clinical Trials
Cancer Care
Cancer Clinical Trials
Cancer Clinical Trials: A New National System
Cancer Studies at the NIH
Cardiology/Vascular Diseases
CenterWatch provides information on clinical trials and new drugs approved by the FDA
Clinical Trials
Dental/Maxillofacial Surgery
Dermatology/Plastic Surgery
Endocrinology
Gastroenterology
Graft-versus-Host Disease
Healthy Patient Studies
Hematology
Huntington Study Group
Immunology/Infectious Diseases
Musculoskeletal
National Institute for Cancer information on clinical trials for cancer
National Institutes of Health provides patients, family members and members of the public current information about clinical research studies
Nephrology/Urology
Neurology
Obstetrics/Gynecology
Oncology
Ophthalmology
Otolaryngology
Pancreatica.org
Pediatrics/Neonatology
Pharmacology/Toxicology
Psychiatry/Psychology
Pulmonary/Respiratory Diseases
Research and Clinical Trials - Office of Rare Diseases
Rheumatology
Search for Clinical Trials
Southwest Oncology Group
Trauma/Emergency Medicine
Trials Program in Treatment and Prevention
Virtual Trials
Cockayne Syndrome
Medical College of Wisconsin
Cockayne's Syndrome Handbook
National Center for Biotechnology
Communication Disorders
National Institute on Deafness and Other Communication Disorders
Continence
National Association for Continence
Cornelia de Lange
Cornelia de Lange Syndrome Foundation
Cystic Fibrosis
National Cystic Fibrosis Foundation
D [back to top]
Deaf
Abused Deaf Women's Advocacy Services
Alexander Graham Bell Association for the Deaf
American Society for Deaf Children
Association of Late Deafened Adults
Better Hearing Institute
Captioned Media Program
Council on the Education of the Deaf
Federal Relay Service
Gallaudet University
National Association of the Deaf
National Center for Law and the Deaf
National Deaf Academy
National Deaf Education Center
National Institute on Deafness and Other Communication Disorders
Deaf-Blind
American Assoc. of Deaf-Blind
Association of Deaf-Blind
Deaf-Blind Educational Links
DeafBlind International
Nat. Family Assoc. for Deaf-Blind
Overview on Deaf-Blindness
Deaf Blind Information
Deaf Blind Manual Alphabet
Helen Keller National Center for Deaf-Blind Youths & Adults (HKNC)
National Information Clearinghouse on Children who are Deaf-Blind
NTAC National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind
Developmental Disabilities – see also Disabilities or the specific condition/disease
ACED - Adult Continuing Education for Persons with Developmental Disabilities
Developmental Disabilities Councils in each state
National Association of Developmental Disabilities Councils
SC Developmental Disabilities Council
Women with Developmental Disabilities
Diabetes
American Diabetes Association
Juvenile Diabetes Foundation International (JDF)
National Diabetes Information Clearinghouse (NDIC)
Dialysis
Global Dialysis: Dialysis Centres and Travel around the world
Down Syndrome
National Down Syndrome Society
Dwarfism - see Short Stature, Growth Disorder
Dyslexia
Children and Adults with Attention Deficit Hyperactivity Disorder - CHADD
Dyslexia the Gift
International Dyslexia Association
Orton Society
Recordings for the Blind and Dyslexic
Dystonia
Dystonia Bulletin Board Support Group
Dystonia Foundation
International Dystonia On-Line Support Group
National Spasmodic Dysphonia Association
E [back to top]
Environmental Illnesses
Birth Defect Research for Children
HEAL (Human Ecology Action League) for persons with environmental illnesses
Epilepsy
American Epilepsy Society
Epilepsy Canada
Epilepsy Foundation of America
Exceptional Children - see Gifted Children
F [back to top]
Facial Reconstruction
National Foundation for Facial Reconstruction
Fetal Alcohol
Alcohol Related Birth Injury
(FAS/FAE) Resource Site
FASlink
Fetal Alcohol and Drug Unit
Fetal Alcohol Syndrome
Fetal Alcohol Syndrome Family Resource Institute
Fragile X
National Fragile X Foundation
Fibrodysplasia
Medicine - Fibrodysplasia Ossificans : Article by Slawomir Majewski, MD
Fibrodysplasia Ossificans Progressiva: Treatment, Prevention, Cure
International Fibrodysplasia Ossificans Progressiva
Rare/Orphan Diseases Fibrodysplasia Ossificans Progressiva
G [back to top]
Gaucher Disease
Albany Medical Center online screening questionnaire to determine eligibility for free Gaucher disease testing; links to other Gaucher disease web sites
Gaucher Disease Treatment Program
National Gaucher Disease Foundation
Gifted Children
Educators of Gifted, Talented, and Creative Children in B.C.
ERIC - Clearinghouse on Disability & Gifted Education
Gifted-Children.com (GCC) is an on-line parents' newsletter with networking and information dedicated to making a difference in the education of children with special talents and abilities
Gifted Children Parenting K-6
GT World on-line support community for parents of Gifted and Talented children
Highly Gifted Children in Full Inclusion Classrooms
Hoagies' Gifted Education Page
Joy and Loss:The Emotional Lives of Gifted Children
Mis-Diagnosis and Dual Diagnosis of Gifted Children
Parent Resources for Gifted Children
State Gifted Education Associations
Supporting Emotional Needs of the Gifted (SENG) focuses primarily on the adults in the lives of gifted children
Teacher Resources for Teaching the Gifted Child
The Association for the Gifted (TAG) a division of The Council for Exceptional Children organized to help both professionals and parents deal more effectively with the gifted child
The Council for Exceptional Children (CEC)
The Gifted Development Center serves parents, schools, and advocacy groups with information about identification, assessment, counseling, learning styles, programs, presentations, and resources for gifted children and adults
The Gifted Resources Home Page
The National Association for Gifted Children (NAGC)
The National Parent Information Network (NPIN)
Glaucoma
American Health AssistanceFoundation
Glaucoma Research Foundation
The Glaucoma Foundation
Graft-versus-Host Disease
Graft-versus-Host Disease – discussion group
Graft-versus-Host Disease – clinical trials
Growth Disorders - see also Short Stature
Dwarfism
Human Growth Foundation
Magic Foundation
H [back to top]
Hearing - see also Deaf
Better Hearing Institute, Hearing Helpline
Hard of Hearing/Deafened Forum
Hearing Industries
Hear-It
Search Wave - audiology search engine
Self Help for Hard of Hearing People information about hearing loss and hearing impairment
Heart
American Heart Association - information about heart health
Heart Disease
Heart Health
Mid America Heart Institute
Huntington's Disease
Huntington's Disease - medical resources, events conferences, donations information, and other related information about Huntington's disease
Huntington Study Group
Hypopigmentation
National Organization for Albinism & Hypopigmentation
I [back to top]
Immune Defiency
Immune Deficiency Foundation
J [back to top]
Juvenile Diabetes – see Diabetes
K [back to top]
Krabbes-Disease
GeneClinic
Hunter's Hope - Jim Kelly's Foundation - organization devoted primarily to Krabbe's Disease
Krabbes Family Network - resources for families with Krabbe affected children.
National Institute of Neurological Disorders - Krabbe Disease Information Page
National Organization for Rare Disorders - many pages on Krabbe. When page loads, run search on "krabbe".
United Leukodystrophy Foundation - foundation devoted to all Leukodystrophies.
L [back to top]
Language
American Speech-Language-Hearing
Learning Disabilities
ABA Materials - CD-ROMs with color images that parents print as flash cards to teach children with learning disabilities
Internet Special Education Resources
LD OnLine
LD Resources
Learning Disabilities Association
National Adult Literacy and Learning Disabilities Center
National Center for Learning Disabilities, Inc.
Leukemia
Leukemia Society of America
Little People – see Short Stature
Lou Gerhig's Disease – see ALS
Lowe's Syndrome
Lowe's Syndrome Association
Low Vision – see also Blind, Visual Impairment
Low Vision Gateway
Lupus
Lupus Foundation of America
M [back to top]
Macular Degeneration
American Health AssistanceFoundation
Mental Health
American Psychological Association
Bazelon Center for Mental Health Law
Center for Mental Health Services Knowledge Exchange Network
Depression Screening
Family Support and Children's Mental Health - Research & Training Center
Federation of Families for Children's Mental Health
Help Center – American Psychological Association
Mental Health Net
National Alliance for the Mentally Ill
National Institute of Mental Health
National Mental Health Association
National Mental Health Knowledge Exchange Network
Mental Retardation
American Association for Mental Retardation
Arc of the U.S
President's Committee on Mental Retardation
Muscular Dystrophy
Muscular Dystrophy Association
Multiple Sclerosis
MSActiveSource
MS Watch
National Multiple Sclerosis Society
N [back to top]
Neurofibromatosis
Neurofibromatosis, Inc.
Nystagmus
Nystagmus Network
O [back to top]
Osteogenesis Imperfecta Foundation
P [back to top]
Pain - see Chronic Pain
R [back to top]
Rare Disorders
EMEA - European Medicines Evaluation Agency (same as FDA in USA) - European Orphan Drugs
Genetic and Rare Conditions Site
NIH - Office of Rare Diseases
NORD - National Organization of Rare Disorders
RareDiseaseTravel
Rare Genetic Diseases in Children
Research and Clinical Trials - Office of Rare Diseases
S [back to top]
Scoliosis
HealthLink USA – Scoliosis
National Scoliosis Foundation
New York Spine Team
Scoliosis Research Society
Scoliosis Treatment
Spine Health
Spine Universe
Texas Back Institute
Short Stature – see also Growth Disorder
Billy Barty Foundation
Camp Little People
Diastrophic Dysplasia
Dwarfism
Little People of America
Magic Foundation
Shwachman-Diamond Syndrome
Shwachman-Diamond Syndrome
SIDS - see Sudden Infant Death Syndrome
Sleep Apnea
Sleep Apnea
Spine - see also Spinal Cord Injury
Spine Health
Spine University at Colorado Springs
Shepherd Center
South Carolina Spinal Cord Injury Association
Spinal Cord Research Centre
Spinal Cord Injury Resource Center
Spinal Cord Society
Spinal Cord Injury Information Network
University of Alabama's - SCI information Network
Wheel Web
Spinal Cord Tumor
Spinal Cord Tumor Support
Sturge-Weber
Sturge-Weber Foundation
Stuttering
National Center for Stuttering
Sudden Infant Death Syndrome
American SIDS Institute
Heavens Angels
SIDS Alliance
SIDS: Back to Sleep Campaign
SIDS Global Strategy Task Force
SIDS International
SIDS Network
SIDS/OID Information and Counseling Program
SIDS Resource Center
What is Sudden Infant Death Syndrome (SIDS)?
T [back to top]
TBI - Traumatic Brain Injury - see Brain Injury
Transplants
Bone Marrow Test
BMT
Children's Organ Transplant Association
GeneScreen, Inc.
Gift of Life Transplant Support Fund
Infonet Blood and Marrow Transplant Information Network
National Bone Marrow Transplant Link
National Foundation for Transplants
South Carolina Organ Procurement Agency (SCOPA)
Transplant Assistance Fund
Transplant Recipients International Organization, Inc. - (TRIO)
United Network of Organ Sharing - (UNOS)
Traumatic Brain Injury -TBI - see Brain Injury
Trisomies
S.O.F.T. - Support Organization for Trisomy 18, 13 and related disorders
Tourette Syndrome
National Tourette Syndrome Association
Tuberous Sclerosis
Tuberous Sclerosis Alliance
Tumors - see Brain or Spinal Cord Tumor
Turner Syndrome
Turner Syndrome Society
V [back to top]
Visually Impaired - see also Blind
About Visual Impairment
National Association for Parents of Children With Visual Impairments
W [back to top]
Williams Syndrome
Williams Syndrome Foundation
Wilson's Disease
Wilson's Disease Association