Family Caregivers and Alzheimer's Awareness Take Centerstage During November
November is Family Caregivers Month, both nationally and in South Carolina, as well as being National Alzheimer's Disease Awareness Month, and according to a November 9 press release from the non-profit Family Caregiver Alliance, a new study into family caregiving estimates that the total dollar value of the caregiving services provided at greater than $306 billion a year in the United States, an increase of 19% over the last four years.
In South Carolina, the study estimates the total number of family caregivers at 416,214. Those caregivers provide an average of 446,000,000 hours of unpaid care in a year. Those same services would cost in excess of $4.4 billion dollars if they were purchased by private insurance or government programs.
"Families are the mainstay of our long-term care system, with nearly 80 percent of long-term care provided in the home, not in institutions," said Kathleen Kelly, Executive Director of Family Caregiver Alliance.
"That care includes everything from cooking meals to changing feeding tubes, from dispensing medications to managing incontinence. Were families to cease providing this care, the enormous burden placed on our healthcare system would be crippling. We need to respect and honor not only the staggering dollar value of the care these families provide, but also their dedication to the challenging and sometimes exhausting job of caring for their loved ones."
Family caregivers provide a vast array of emotional, financial, nursing, social, homemaking and other services on a daily or intermittent basis. While some family caregivers provide 24/7 care for loved ones who require assistance for all daily living activities, others may provide care on a part-time basis. Family caregiving can extend for a few years or a lifetime.
Read the complete release on the website for the Family Caregiver Alliance's National Caregiving Center..
State-by-state data are available on the Family Caregiver Alliance website.
For more information, contact:
Bonnie Lawrence, Family Caregiver Alliance
(415) 434-3388, Ext. 312 or blawrence@caregiver.org
Deborah Halpern, National Family Caregivers Association
(773) 363-1587 or dhalpern@thefamilycaregiver.org
November is National Alzheimer’s Disease Awareness Month
Holidays Can Be a Stressful Time for Alzheimer's patients and their caregivers. The following article providing some helpful tips for supporting family members who are caring for a loved one with Alzheimer's was provided by Fran Brannon, Program Coordinator for the South Carolina Alzheimer's Resource Coordination Center in the Lt. Governor's Office on Aging:
This month our nation celebrates Thanksgiving. Many enjoy the food, the church services, family and football games that have become popular during this season. What if you couldn’t remember what you were celebrating, or didn’t understand why everyone else around you was celebrating? What if all you could do is remember this very moment, and you could not anticipate the joy and happiness of a holiday to come or remember those of the past?
Many of our parents, friends and relatives are experiencing this condition through a devastating disease called Alzheimer’s disease. Alzheimer’s disease is a major form of irreversible brain disease that usually begins later in life, but can strike people in their 50’s, 40’s, or even younger. It can last anywhere from 2 to 25 years from the time the first symptoms appear. A person can live in good physical condition for many years while requiring 24 hour assistance because of the damage to the part of the brain that controls thinking, judgment, and memory.
Most people with Alzheimer’s disease live with a spouse or family member for the duration of the disease. Although most family caregivers give care out of love, they are not immune to the stress, frustration and isolation that can occur with a disease that changes their lives so drastically. One thing caregivers find most difficult is asking for help. Why? They have the most to lose. If they ask, it is because they are desperate. If they are turned down, it strikes a double blow—one personally and one to their loved one. Don’t make them ask. Just help them!
Here are some suggestions:
- Give the caregiver a break. For example, watch TV with the person with Alzheimer’s while the caregiver takes a bath or a nap. Did you know that some caregivers cannot leave their loved one alone long enough to even take a bath?
- Go for a walk with the person with Alzheimer’s. Many people who have Alzheimer’s disease may wander. This way they can walk safely and the caregiver can take a break.
- Take a meal to their house and eat with them. Caregivers can become isolated and need companionship.
- Offer to stay with their loved one while the caregiver attends church. Spiritual needs and a sense of belonging to a group are often unmet at this time by both the caregiver and the person with Alzheimer’s disease.
- Take a friend with you if you are uncomfortable being with a person who has Alzheimer’s disease. There are lots of thing you can do that will be fun for all of you—toss a beach ball, play card games such as number matching or color matching, make candy or cookies, fold towels or washrags, look at photograph books or magazines, listen to music, dance, etc.
Just showing your love and support to those who are going through this journey with Alzheimer’s can be the greatest gift you give this holiday season—the gift of yourself.